Scleroderma National Conference

I got a call early this week, that I was awarded a scholarship to the 2010 National Patient Education Conference from July 30–Aug. 1. This scholarship covers flight, hotel and registration, meals, transportation from aiport to hotel, and hotel to conference. I was estatic when I recieved the call. There are a few workshops I would like to attend, plus roam around Boston with my Los Angeles Lakers 2010 Championship Hat. Also, there was a message left on my cell phone that a news paper wanted to interview a few patients of scleroderma. The Scleroderma Organization chose me as one of the people they want to have interviewed, because of what I wrote on my reasons why I needed help and would like to attend the conference. That would be cool too. I also met with Senator Jeff Merkley in March to pass a bill that would fund Scleroderma research, that went well, so anything to help. Scleroderma is still considered a rare disease but is chronic crippling disease and in some cases, fatal.

I started a fund raising page for a July 1o, 2010 "Stepping Out to Cure Scleroderma" Walk. It is to raise money for the Oregon Chapter of Scleroderma, the money does not go to me and I know times are rough for everyone, but pass it along anyways. The website for my page is http://www.firstgiving.com/erionmoore2 . The link is also on my facebook page if that does not work.

Lastly, A guy I know from Foothill College is looking to help me raise money for the hospital bills I got caught with in California before I knew how serious my condition of Scleroderma was. He drew the picture and put it on t-shirts to sell. The t-shirt or sweater is my profile picture on my blog page. It is black with white letters. It is me in my prime, when i was a fit athelete with that beautiful natural (afro as some people call them). I think they would have sold when I played ball, but if you or anyone you know would like one, maybe even in different colors let me know. I am looking to post on a website where I can sell that or anything else people would like to help out and that would allow people to purchase through there. Let me know the cheapest website to sell stuff through, or another way to sell stuff. I could even get the money order than send the shirt back to the buyer, which might be easier and cheaper.

I have at least one appointment at my doctors and specialists next week, along with a vocational rehab counselor, keep yall updated.